Okay so it has been a really Long time since I have updated. We went to NIH had another baby Kylie's in 1st grade and its almost Christmas!! Again lol.
We haven't heard from the NIH about anything definite so we will see.
I just cant believe its almost Christmas!

Been A While

So , I have lost ten pounds since started my diet two weeks ago yay. We are going to Maryland Dec. 14 for my daughter and I school started and I am doing well in my classes and Kylie is doing really good in her new classes.
Shayla walks and is talking :( I wish they would stay little haha but I know it's all part of life!!

Kylie's NIH Video

This is the video we made for the National Institute of Health's Undiagnosed Diseases Program. They are reviewing Kylie's case and asked for a video of Kylie to help in their decision making.







Rachael came over and helped make it. Ashlin wanted to help too, if you listen you can hear her a couple of times in the background.

Whaaa Diets :(

So, I started a diet yesterday and I am sooooo hungry! Actually it's not so bad except I do feel like me and hubby are the commercial where the guy loses all the weight and the lady doesn't, haha. Of course he can eat whatever he wants and while i am trying to be good he is eating an ice-cream cone (which I just happened to buy before my brilliant diet idea) Grrr men. But I will be strong and soon enough I will be healthier for it.

HAPPY BIRTHDAY SHAYLA!!

Today is my Shayla's 1st birthday!! She is the sweetest baby on earth and I love her more everyday! She was born in July about 2 months after Kylie first got sick, so it was hard and when she was only 6 weeks old she had to stay with friends in Las Vegas so we could go to Stanford to get Kylie treatment (they don't allow children AT ALL grr)Then the friends couldn't watch her after 2 weeks and I drove half way to Vegas to meet them and drive back to Palo Alto. I got to keep her two days by having Steven sneak her into the hospital at 3am lol but they caught us and I flew her to Boise,Id where my Aunt took great care of her for almost three months. The first time I ever cried in front of my uncle or cousin's was when I had to leave my sweet baby. I was scared we wouldn't have a bond with each other.

The day we got out of the hospital in Oct I picked up Ashlin and we drove to Boise to get our baby Shayla who by then was almost 4 months. She seemed soooo big to me. But we cuddled and bonded and I let her sleep in bed with us for a week. Until Steven said "oh no not this again." (Yep Kylie slept with us until she was about 3 and still tries to come snuggle once in awhile hehe, and Ashlin comes to bed around 11 almost every nite but they are my girls and I love to snuggle)

Now my baby girl is almost walking,talking is one and has 3 teeth and two coming in and I am so proud to be Shayla's mommy!!

Postage due

I am just posting this because I really like swapping and in trying to be nice and let the person who sent this to me know,that person seemed like she thought I was not being truthful about postage being due. Anyway that's why I am posting this. You can see where it says postage due and I paid for it on the 29th of June. I could be completely wrong because I sometimes read more into things then I should :) I hope that is the case.

One Glimmer Of Light In our Tunnel....

Today we got a letter saying Kylie has been excepted for an appt at the N.I.H in Bethesda Maryland. That's the National Institute of Health. For the undiagnosed diseases program. Hopefully we will hear soon when we go but we are soooo happy I can't even verbalize it.